Ronan was discharged Friday evening (we were ready to leave in the afternoon, but the sedatives they gave him for removing the two tubes kicked in and he slept for 3 hours)...so the 3 of us stayed in Halifax and arrived home Saturday afternoon. The boy is feeling good - he's up and about and only on children's Tylenol as needed. Remarkable. In Dr. Berman's words, Ronan is "WonderBoy"...we all knew that though :)
On Friday afternoon Dr. Fernadez spoke to us and said that Ronan's case was discussed at their tumor review meeting this past Wednesday evening. They were all very pleased with the results of his surgery, but the spots on his lung were "on their radar". The CT scan that was done a few weeks ago showed that the tumors had decreased even more and so had the spots on his lung. They have never been able to know whether these spots were tumors or scar tissue caused from the abdominal swelling when this all began - and only removal and a biopsy report will tell us for sure. Surgery on his liver was long (9 hours) and complicated (the tumor was stuck to his abdominal wall and to his diaphragm and there was a lot of blood loss/transfusions - 8 units! - and a little over half the liver removed). The surgeon felt that since they were so successful after 9 hours, and all of the tumor mass was removed, they didn't want to put Ronan through more and continue to remove the spots on his lung. So, the new plan is: chemotherapy, surgery on his lung, and then one last round of chemo. And Hawaii? Dr. Fernandez would like us to try and fit that in next week (if we can make it work that quickly) before Ronan's next round of chemo!
xo
Ronan was born on June 13, 2001 in Edmonton to Joe and Ali. He is a big brother to Malcolm; grandson to Lydia, Teresa and Bob; nephew, cousin and friend to many. A 4th grader at Prince Charles School; musician; music lover; chess champion; Harry Potter fan; bananagram-er; card shark; board gamer, corny joke teller. And cancer fighter.
This blog is intended to ensure that Ronan’s vast support team of family and friends are connected, informed and engaged while he, dad Joe, mom Ali and brother Malcolm help him beat a terrible, scary disease - embryonal sarcoma, a rare childhood liver cancer. So welcome to Ronan’s blog. Sit, read, cry, and vow to fight this fight with Ronan, Malcolm, Ali and Joe. And please leave a few words of encouragement with a Comment.
This blog is intended to ensure that Ronan’s vast support team of family and friends are connected, informed and engaged while he, dad Joe, mom Ali and brother Malcolm help him beat a terrible, scary disease - embryonal sarcoma, a rare childhood liver cancer. So welcome to Ronan’s blog. Sit, read, cry, and vow to fight this fight with Ronan, Malcolm, Ali and Joe. And please leave a few words of encouragement with a Comment.
We're praying for Ronan as he recovers and that you'll enjoy some much needed rest. I'm also super pumped about our show in New York to support Team Ronan. I'll keep you updated - our show is Friday night in Fairport, NY. Give Ronan a high five from a SJ'er, in New York cheering him on.
ReplyDeleteHave a thrilling vacation in Hawaii before the next phase of victory!! Ronan sure is WonderBoy!! And you are a WonderFamily!! We all look up to you!! Bon Voyage and wishing for many sweet surprises for you all on the trip!! God bless!!
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